Macy
Describe your life prior to diagnosis. Growing up, I felt a lack of energy constantly. I needed naps constantly and would sleep 12 hours every night. By the time I was 19, I was throwing up almost...
View ArticleJennafer
Describe your life prior to diagnosis. For more than two decades, I survived on foods that would now make me ill. There were some odd episodes here and there where symptoms like the ones I constantly...
View ArticleMia
As Mia is still a minor, her story is told by her mother, Allison. Describe your child’s life prior to diagnosis. Mia was a typically developing child, meeting all of her milestones on time and always...
View ArticleRachel
Describe your life prior to diagnosis. When I was 15, I started getting chronic migraines and neck pain after a concussion & whiplash injury from basketball. I was in constant pain for most of...
View ArticleMadison
Describe your life prior to diagnosis. My life was very painful prior to diagnosis. I began experiencing symptoms of celiac disease at age three. No one could figure out what exactly was wrong until I...
View ArticleShavon
As Shavon is a minor, her story is told by a guardian. Describe your life prior to diagnosis. Before my celiac disease diagnosis, I would have the occasional stomach ache. Despite these occasional...
View ArticleKhloe
Content Warning: This article contains a mention of depression and self-harm. As Khloe is still a minor, her story was sent by her mother, Cyndi. Describe your life prior to diagnosis. I didn’t...
View ArticleKendra and Suki
Describe your life prior to diagnosis. I lived a fairly normal life for most of my life, and didn’t have any concerns that I had celiac disease. I was plagued with regular sickness and bronchitis...
View ArticleElio
Describe your life prior to diagnosis. All my life, I’ve experienced chronic pain and it was debilitating to the point of missing classes and sports. When I’d experience pain, it was like my body was...
View ArticleKaty S.
Describe your life prior to diagnosis. Anemic. Exhausted. Always had a stomach ache. Mouth ulcers. Hypoglycemia. How did you find out that you had celiac disease? Did you suspect it beforehand? Doc...
View ArticleClaire S.
As Claire is a minor, her story is told by her mother, Stacie. Describe your life prior to diagnosis. Claire would not be able to keep any food down, and was violently throwing up for hours. How did...
View ArticleMelissa
Content warning for miscarriage and baby loss Describe your life prior to diagnosis. I was pretty unaware I had any problems prior to my miscarriages. Before, I had constipation, bloating, lactose...
View ArticleLana
Describe your life prior to diagnosis. I had ever-worsening osteoporosis, and oral meds did not help. I eventually took bone density injections every six months for two years, and had two bone density...
View ArticleZoe
Content warning: discussion of eating disorders. Describe your life prior to diagnosis. I’m 16 years old from Philadelphia and I am a junior in high school. When I think about my life prior to my...
View ArticleEmma
Describe your life prior to diagnosis. Prior to my celiac disease diagnosis, I was always in the kitchen cooking with my grandma, making meals for my family. I enjoyed having the freedom of eating...
View ArticleLillian
Describe your life prior to diagnosis. For the past four to five years I faced a large list of symptoms, and that list only grew longer and more intense as the years went by. At first, I had...
View ArticleCaitlin
Describe your life prior to diagnosis. I worked almost daily at Subway to pay for university and save for summer travel, often eating sandwiches one to two times a day. I dealt with the usual...
View ArticlePam
Describe your life prior to diagnosis. My journey with health challenges began when I was just six years old, diagnosed and treated for anemia. But it wasn’t until I turned 14 and started experiencing...
View ArticleTamara
Describe your life prior to diagnosis. At the age of 35, I began having stomach issues. It seemed like “nervous stomach” as I was in the midst of a huge life change: moving from Florida to Boston for...
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